Support Tool for Families of High-Risk Children With Heart Disease During Hospital Admission and After Discharge

Withdrawn before enrolling · Not applicable

Conditions studied: Heart Disease Congenital

In brief

The goal of this study is to pilot the "support tool" in the Nemours Cardiac Center to assess acceptability and feasibility. This tool will be offered to 5 high-risk families, and they will be asked to complete a survey. In addition, healthcare providers including bed-side nurses and cardiologists will be asked to complete a survey to assess the feasibility of the tool.

Key facts

Study ID

NCT05926661

Run by

Nemours Children's Clinic

People needed

0

Starts

2023-11-29

Expected to finish

2024-04-30

Last updated by the study team

2025-09-19

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• Parents of a child with congenital heart disease and planned discharge from the Nemours Cardiac Center.

You may not qualify if…

• Non-English and Non-Spanish speaking families.
• The Healthcare providers group is pre-identified and they will be invited to provide feedback through semi-structured qualitative interviews only. They will not receive any intervention. Their participation will be voluntary.

Where it is running

• Nemours Children's Hospital — Wilmington, Delaware, United States

Full record on ClinicalTrials.gov

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