Understanding Factors in Decision Making for Children With Medical Complexity

Completed · Not applicable

Conditions studied: Multiple Chronic Conditions, Children With Medical Complexity

In brief

The goal of this clinical trial is to compare different strategies to communicate around potential risks and benefits related to treatment decision making in parents/adult caregivers of children with medical complexity. The objective of this study is to identify the most effective ways to communicate decision-related risks and benefits to improve the quality of caregiver decision making for children with medical complexity. Participants will view a video of a simulated clinic visit and related medical information and complete a survey about their experiences. Researchers will compare participant survey responses to see if decision quality changes based on the information reviewed by the participant.

Key facts

Study ID

NCT05913206

Run by

University of Utah

People needed

831

Starts

2023-06-29

Expected to finish

2024-08-29

Last updated by the study team

2026-02-24

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Adult caregiver of a child with medical complexity
• English- or Spanish-speaking

You may not qualify if…

• Child is diagnosed with neuromuscular scoliosis but has not yet made a decision about whether to undergo spinal fusion.

Where it is running

• Children's Hospital Los Angeles — Los Angeles, California, United States
• University of Utah — Salt Lake City, Utah, United States

Full record on ClinicalTrials.gov

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