Synovial Sarcoma Registry / Biospecimen Repository

Recruiting now

Conditions studied: Synovial Sarcoma

In brief

The purpose of this study is to collect and store data and samples for future research to attempt to improve outcomes for patients with synovial sarcoma. The future research will involve various types of genetic testing. Participants will be asked to allow access to medical records and leftover tumor tissue and may be asked to give a blood or saliva sample. Participants will also be asked to completed questionnaires about their medical history and may be contacted every 6 to 12 months for updates for up to 10 years.

Key facts

Study ID

NCT05910307

Run by

Children's Hospital of Philadelphia

People needed

1000

Starts

2023-06-12

Expected to finish

2033-06-01

Last updated by the study team

2026-06-09

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Males or females of any age
• Reported diagnosis of synovial sarcoma
• Informed consent from subject (aged ≥18 years) or parent/guardian

You may not qualify if…

• Individuals with sarcomas that do not fit the definition of those considered for this registry
• Individuals who are unwilling to participate
• Individuals who are unwilling or unable to provide written consent

Where it is running

• Children's Hospital of Philadelphia — Philadelphia, Pennsylvania, United States (enrolling)

Full record on ClinicalTrials.gov

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