LEADing Dementia End-of-Life Planning Conversations
Running, not enrolling · Not applicable
Conditions studied: Alzheimer Disease, Mild Cognitive Impairment
In brief
Advance care planning is important for all adults, but perhaps even more so for the 5.7 million persons with Alzheimer's disease or related dementia (ADRD), due to the progressive and protracted cognitive deterioration associated with the disease process. In the context of ADRD, medical decision-making at the end of life is typically left to one's care partner, who often does not have the knowledge or confidence in their ability to make such decisions. This study will refine and evaluate a web-based platform, called the LEAD Intervention (Life-Planning in Early Alzheimer's and other Dementias), which is designed to help persons in the preclinical or early stage of ADRD engage in conversations about, document, and share their end-of-life values and preferences with a care partner, extended family members, and health care providers.
Key facts
- Study ID
- NCT05909189
- Run by
- University of Utah
- People needed
- 120
- Starts
- 2024-08-04
- Expected to finish
- 2027-05-31
- Last updated by the study team
- 2026-07-10
Who can join
Age: 18 and older. Sex: any. Healthy volunteers: accepted.
You may qualify if…
- Care Recipient (CR) is age 50+
- CR Is interested in having conversations about and documenting wishes for future end-of-life care
- CR has noticed changes in memory or thinking skills indicative of preclinical or early stage of AD, OR
- CR has been diagnosed with mild cognitive impairment, Alzheimer's disease, or another type of dementia and in the preclinical or early stage
- Care Partner (CP) is age 18+
- CP is a Spouse/partner, family member, or close friend of CR
You may not qualify if…
- Has moderate to severe symptoms of dementia
Where it is running
- University of Utah College of Nursing — Salt Lake City, Utah, United States
Full record on ClinicalTrials.gov
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