Speech Accessibility Project
Completed
Conditions studied: Parkinson Disease, Progressive Supranuclear Palsy, Multiple System Atrophy, Dementia With Lewy Bodies
In brief
The goal of the Speech Accessibility Project at the University of Illinois Beckman Institute (https://speechaccessibilityproject.beckman.illinois.edu) is to collect, annotate, and curate a shared database of speech samples from people with atypical speech, and share this data set with researchers at other organizations. This two-year project plans to collect 1,200,000 speech samples from 2,000 people, each of whom will provide 600 samples. In Year 1, the initial focus will be people with Parkinson's. In Year 2, four more etiologies of interest will be recruited: Amyotrophic Lateral Sclerosis (ALS), Cerebral Palsy (CP), Down Syndrome (DS), and Stroke. UIUC will build an open-source software infrastructure to collect annotated speech samples and share these data in an appropriately secure fashion with researchers from our partner technology companies (and eventually, other organizations as well) so that they can use these data to improve their automatic speech recognition algorithms. This project promotes diversity, equity, and inclusion by helping technology companies to fully support all types of speech, and it is also more efficient and less burdensome for these specialized patient populations to have one centralized "collector" of speech samples.
Key facts
- Study ID
- NCT05889260
- Run by
- University of Illinois at Urbana-Champaign
- People needed
- 485
- Starts
- 2023-03-15
- Expected to finish
- 2025-07-31
- Last updated by the study team
- 2025-08-17
Who can join
Age: 18 and older. Sex: any. Healthy volunteers: not accepted.
You may qualify if…
- Adult (age >= 18 years)
- Self-reported diagnosis of Parkinson's Disease, ALS, CP, DS, or Stroke
- Reads and speaks English in the form of complete sentences
- Has a valid email address
- Ability to access web browser to participate in study
You may not qualify if…
- Is a resident of the State of Washington, Texas, or Illinois (because these states have privacy laws that would not allow us to collect 'voice prints')
- If quality control screening of initial speech samples "fails" because of poor data quality (e.g., poor quality recording environment, or person's speech is "too typical" and not sufficiently interesting to continue collecting)
Where it is running
- LSVT Global — Denver, Colorado, United States
- University of Illinois at Urbana-Champaign — Urbana, Illinois, United States
Full record on ClinicalTrials.gov
Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.