Caregiving While Black

Completed · Not applicable

Conditions studied: Caregiver Burden

In brief

The goal of this project is to revise and test an online education program designed to enhance the mastery of Black American caregivers to provide care to family members or friends living with a dementia illness. This study has two phases, and participants will take part in Phase 1 and/or Phase 2 of this study. Participants will take part in one and/or both phases in this study if they are a caregiver to a person living with dementia. Caregivers must self-identify as Black American and as the unpaid principal caregiver of a community-dwelling person living with a dementia illness and who is the principal companion of that person during healthcare encounters. Caregivers must also be 18 years of age or older and will be providing at least some hands-on care multiple times a week, if not daily. It is preferred that participants have access to and the ability to use broadband internet services to engage with the Caregiving While Black course. Participants should not have a plan in place to move the person living with a dementia illness to an institutional setting within the next six months.

Key facts

Study ID: NCT05772689
Run by: Emory University
People needed: 140
Starts: 2023-05-06
Expected to finish: 2025-12-31
Last updated by the study team: 2026-06-01

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: accepted.

You may not qualify if…

Those who cannot provide consent,
are not yet adults (<18 years of age),
prisoners, cognitively impaired adults,
has plans to relinquish caring responsibilities for PLWD or considering moving the PLWD to an institutional setting within the next 6 months, and
who are not able to clearly understand English.

Where it is running

Emory University — Atlanta, Georgia, United States

Full record on ClinicalTrials.gov

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