Natural History of SMA

Recruiting now

Conditions studied: Muscular Atrophy, Spinal

In brief

This is an investigator initiated observational study with the aim to record several aspects of function, care and adverse events in a large cohort of SMA patients followed longitudinally by using a structured academic disease registry.

Key facts

Study ID

NCT05755451

Run by

Fondazione Policlinico Universitario Agostino Gemelli IRCCS

People needed

1200

Starts

2018-06-21

Expected to finish

2033-12-30

Last updated by the study team

2023-03-06

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• all patients

You may not qualify if…

• if enrolled in clinical trials

Where it is running

• Istituto Gaslini — Genova, Italy (enrolling)
• Nemo Sud — Messina, Italy (enrolling)
• Centro Clinico nemo — Milan, Italy (enrolling)
• Ospedale Bambino gesu — Rome, Italy (enrolling)
• Policlinico gemelli — Rome, Italy (enrolling)

Full record on ClinicalTrials.gov

Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.