Genetic Predisposition Testing Program for Pancreatic Neuroendocrine Neoplasms
Recruiting now
Conditions studied: Pancreatic Neuroendocrine Neoplasm
In brief
This is a prospective observational multi-center pilot study of germline testing for participants receiving care at University of California participating locations with a new or existing diagnosis of Pancreatic Neuroendocrine Neoplasms (PanNEN). This protocol is an extension of existing Genetic Testing Station efforts at University of California, San Francisco (UCSF)
Key facts
- Study ID
- NCT05746182
- Run by
- University of California, San Francisco
- People needed
- 300
- Starts
- 2023-04-07
- Expected to finish
- 2026-12-31
- Last updated by the study team
- 2026-01-26
Who can join
Age: 18 and older. Sex: any. Healthy volunteers: not accepted.
You may qualify if…
- Histologically confirmed PanNEN.
- a. The diagnostic biopsy may have been taken from any site (primary or metastatic).
- New and existing PanNEN participants will be eligible (any grade, any stage, any age > 18 years).
- Participants willing and able to comply with the study procedures.
You may not qualify if…
- Inability to provide informed consent.
- For participants who have not had prior testing with a dedicated germline pane of at least 80 genes:
- Inability to speak/read a language supported by the germline testing station (GTS). The supported languages currently include English, Korean, Japanese, Vietnamese, Russian, Tagalog, Farsi, Spanish, Cantonese, Mandarin, and Arabic).
- Active hematologic malignancy.
- History of allogenic bone marrow transplant or stem cell transplant.
Where it is running
- University of California, Los Angeles — Los Angeles, California, United States (enrolling)
- Univeristy of California, San Diego — San Diego, California, United States (enrolling)
- University of California, San Francisco — San Francisco, California, United States (enrolling)
Full record on ClinicalTrials.gov
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