Care Plans for Cancer Predisposition
Completed · Not applicable
Conditions studied: Genetic Predisposition
In brief
Develop and evaluate acceptability, feasibility, and preliminary efficacy of digital care plan and accompanying text message reminders for children and adolescents with a known Cancer Predisposition Syndromes (CPS).
Key facts
- Study ID
- NCT05736497
- Run by
- Children's Hospital of Philadelphia
- People needed
- 177
- Starts
- 2023-08-25
- Expected to finish
- 2025-06-10
- Last updated by the study team
- 2026-07-23
Who can join
Age: 12 and older. Sex: any. Healthy volunteers: not accepted.
You may qualify if…
- Parents
- Parent or Legal Guardian of a patient with a known cancer predisposition syndrome diagnosed within the last 5 years
- Received care at the Cancer Predisposition clinic at the Children's Hospital of Philadelphia (CHOP), or other medical institutions (does not need to be receiving follow-up care at CHOP)
- Appropriate to approach per oncology team/cancer predisposition team
- No cognitive impairment limiting ability to complete measures
- Ability to read and speak English fluently
- Adolescent/Young Adult (AYA) probands
- Child proband with a known cancer predisposition syndrome diagnosed within the last 5 years
- Ages 12+
- Received care at the Cancer Predisposition clinic at the Children's Hospital of Philadelphia (CHOP), or other medical institutions (does not need to be receiving follow-up care at CHOP)
- Appropriate to approach per oncology team/cancer predisposition team
- No cognitive impairment limiting ability to complete measures
- Ability to read and speak English fluently
You may not qualify if…
- Not meeting any of inclusion criteria
Where it is running
- Children's Hospital of Philadelphia — Philadelphia, Pennsylvania, United States
Full record on ClinicalTrials.gov
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