Pilot Testing Dementia-Enhanced Training and Tool for Home Hospice Clinicians

Completed · Not applicable

Conditions studied: Alzheimer's Disease and Related Dementias

In brief

The purpose of this study is to pilot test the feasibility, acceptability, and preliminary efficacy of a clinically useful, inclusive dementia-enhanced training and tool for use by home hospice clinicians to improve care and support for Black and White patients with dementia and their family caregivers. The investigators expect family caregivers of clinicians in the intervention group will report less caregiver burden (primary outcome) than caregivers of clinicians in the control group. The investigators expect that, compared to clinicians in the control group (usual care), clinicians in the intervention group (receive the training and use the tool) will demonstrate more knowledge of dementia-related caregiving issues (secondary outcomes). In exploratory analyses, the investigators expect family caregivers will report greater self-efficacy and preparedness, and that patients of clinicians in the intervention group will experience fewer live discharges than family caregivers of patients of clinicians in the control group.

Key facts

Study ID

NCT05719077

Run by

Rutgers, The State University of New Jersey

People needed

93

Starts

2023-10-06

Expected to finish

2025-12-24

Last updated by the study team

2026-07-16

Who can join

Age: 19 and older, up to 90. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• Individuals are not excluded from this study based on gender.
• Based on proportion of hospice workforce and family caregivers that are female, we expect 70%-80% of participants will be female.
• Nurse, social worker, or family member who provides care to persons(s) living with dementia enrolled in home hospice care.
• 19-90 years old.
• Can complete data collection in English.
• Family Caregivers: identify as White or Black/African American.

You may not qualify if…

• Participant is less than 19 years old or older than 90 years old.
• Does not provide care to person(s) living with dementia enrolled in home hospice.
• Cannot complete data collection in English.
• Family Caregiver does not identify as White or Black/African American.

Where it is running

• Rutgers Univeristy — New Brunswick, New Jersey, United States

Full record on ClinicalTrials.gov

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