Duchenne Muscular Dystrophy Video Assessment Registry

Completed

Conditions studied: Duchenne Muscular Dystrophy

In brief

ARISE is a prospective and longitudinal clinical study of individuals with Duchenne Muscular Dystrophy (DMD) aimed at creating a database of functional motor abilities in this population to support validation efforts of the Duchenne Video Assessment (DVA).

Key facts

Study ID

NCT05712447

Run by

The Emmes Company, LLC

People needed

150

Starts

2022-09-01

Expected to finish

2026-01-11

Last updated by the study team

2026-03-10

Who can join

Age: 2 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• At least 2 years of age at time of consent
• Written consent (English only) by adult participant or parent/legal guardian of minor participant
• Written assent (English only) if minor participant is at least 7 years of age
• Documentation provided for the participant's diagnosis of DMD (i.e., genetic report, clinic note)

You may not qualify if…

• Participants will be excluded if they are unable to use a hand to hold a pen, pick up pennies or drive a powerchair.

Where it is running

• Emmes — Rockville, Maryland, United States

Full record on ClinicalTrials.gov

Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.