TSC Biosample Repository and Natural History Database

Recruiting now

Conditions studied: Tuberous Sclerosis, Lymphangioleiomyomatosis

In brief

The TSC Biosample Repository collects and stores samples of blood, DNA, and tissues that scientists can request to use in their research. The samples we collect are all linked to clinical data in the TSC Natural History Database. The TSC Natural History Database captures clinical data to document the impact of the disease on a person's health over his or her lifetime. This data may be collected retrospectively or prospectively.

Key facts

Study ID

NCT05676099

Run by

National Tuberous Sclerosis Association

People needed

5000

Starts

2016-01-01

Expected to finish

2050-12-01

Last updated by the study team

2026-06-24

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Diagnosis of tuberous sclerosis complex or lymphangioleiomyomatosis (sporadic LAM).

Where it is running

• Sainte-Justine Université de Montréal — Montreal, Canada (enrolling)
• Loma Linda University Children's Hospital — Loma Linda, California, United States (enrolling)
• University of California Los Angeles — Los Angeles, California, United States (enrolling)
• University of Alabama Birmingham — Birmingham, Alabama, United States (enrolling)
• The Children's Hospital — Denver, Colorado, United States (enrolling)
• Nicklaus Children's Hospital — Miami, Florida, United States (enrolling)
• Chicago Comer Children's Hospital Neurogenetic Clinic, University of Chicago — Chicago, Illinois, United States (enrolling)
• University of Iowa Hospitals and Clinics — Iowa City, Iowa, United States (enrolling)
• TSC Alliance — Silver Spring, Maryland, United States (enrolling)
• Boston Children's Hospital — Boston, Massachusetts, United States (enrolling)
• Massachusetts General Hospital — Boston, Massachusetts, United States (enrolling)
• Minnesota Epilepsy Group — Roseville, Minnesota, United States (enrolling)
• Children's Mercy Research Institute — Kansas City, Missouri, United States (enrolling)
• Washington University in St. Louis — St Louis, Missouri, United States (enrolling)
• New York University Medical Center — New York, New York, United States (enrolling)
• University of Rochester Medical Center — Rochester, New York, United States (enrolling)
• Cincinnati Children's Hospital Medical Center — Cincinnati, Ohio, United States (enrolling)
• Cleveland Clinic Foundation — Cleveland, Ohio, United States (enrolling)
• University of Pennsylvania Medical Center — Philadelphia, Pennsylvania, United States (enrolling)
• Le Bonheur Children's Hospital — Memphis, Tennessee, United States (enrolling)
• Scottish Rite Hospital for Children — Dallas, Texas, United States (enrolling)
• Texas Childrens Hospital Baylor College of Medicine — Houston, Texas, United States (enrolling)
• Memorial Hermann-Texas Medical Center (University of Texas Houston) — Houston, Texas, United States (enrolling)
• Children's National Medical Center — Fairfax, Virginia, United States (enrolling)
• Centre Hospitalier de l'Université de Montréal — Montreal, Canada (enrolling)

Full record on ClinicalTrials.gov

Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.