Angelman Syndrome Video Assessment (ASVA) Source Material Study

Completed

Conditions studied: Angelman Syndrome

In brief

This is a longitudinal, observational, nonrandomized, fully remote study enrolling approximately 55 participant-caregiver dyads. The study includes no treatments or interventions, and participants will not be asked to change their current treatments. The objective of this study is to gather sufficient source material videos to develop a scoring system for ASVA and to perform preliminary validation of that scoring system.

Key facts

Study ID
NCT05637697
Run by
The Emmes Company, LLC
People needed
73
Starts
2021-08-31
Expected to finish
2023-08-01
Last updated by the study team
2023-12-13

Who can join

Age: 1 and older. Sex: any. Healthy volunteers: accepted.

Where it is running

Full record on ClinicalTrials.gov

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