Hormonal Influences on Inflammatory Bowel Diseases
Completed
Conditions studied: Inflammatory Bowel Diseases, Contraception, Menstrual Problem
In brief
Of the 1.8 million females with inflammatory bowel diseases (IBD) in the US, over half of those who are premenopausal suffer from cyclical menstrual-related IBD symptoms, regardless of how well their disease is controlled. Despite the significant impact that cyclical IBD symptoms, such as abdominal pain, diarrhea, and fatigue have on quality of life, evidence about how to alleviate these symptoms is lacking. In other chronic conditions which are hormonally influenced, such as epilepsy, hormonal contraception may be used to favorably impact disease-related symptoms associated with menses and improve quality of life. In our previous cross-sectional study, 47% of the levonorgestrel intrauterine device users and 19% of combination oral contraceptive users reported improvement in their cyclical IBD symptom. All hormonal methods may plausibly improve symptoms, but prospective, rigorous data evaluating their efficacy for this purpose are lacking. In order to design a future comparative effectiveness trial on the effect of hormonal contraceptive methods on menstrual-related IBD symptoms, we propose this pilot prospective cohort study of 200 females with IBD: 100 naturally cycling and 100 hormonal contraception users. We will gain essential knowledge on IBD-specific influences on contraceptive method selection, willingness to be randomized to methods, the ability of IBD patient reported outcome (PRO) instruments to differentiate between non-menstrual and menstrual-related IBD symptoms, and assess the potential role of inflammatory markers as outcome measures in future trials. We will recruit participants from the University of Utah IBD Center and clinics, other Utah gastroenterology providers, and through social media ads. Total study commitment will be \~12 weeks. Study activities will include daily and weekly text message surveys, as well as blood draws and fecal samples for inflammatory markers in a subset of participants which are commonly used for IBD management. Our aims include: (1) To identify preferences and reasons for contraceptive method selection (or non-use) and willingness to participate in a randomized controlled trial, to inform feasibility of a future trial, (2) To obtain estimates of means and standard deviations for the validated Crohn's Disease and Ulcerative Colitis PRO Instruments by menstrual timing in naturally-cycling participants and between bleeding and non-bleeding days in hormonal contraception users, and (3) To assess correlation between inflammatory marker changes (fecal calprotectin \& high sensitivity C-reactive protein), menstrual timing or bleeding/non-bleeding days, and IBD PRO responses, in a subset of 30% of Aim 1 participants. This pilot will inform a future trial design to define non-contraceptive benefits of hormonal contraception on cyclical IBD symptoms. This line of inquiry will allow for an adjuvant approach for IBD symptom management that is sex-specific and addresses both concerns for hormonal triggers and the need for highly-effective contraception for those who desire it.
Key facts
- Study ID
- NCT05610527
- Run by
- University of Utah
- People needed
- 50
- Starts
- 2025-07-01
- Expected to finish
- 2025-12-09
- Last updated by the study team
- 2026-04-17
Who can join
Age: 18 and older, up to 45. Sex: female. Healthy volunteers: not accepted.
You may qualify if…
- Between 18-45 years old
- Fluent in English and/or Spanish
- Have biopsy-proven UC or CD (confirmed by medical records and/or through screening questions- see below enrollment procedures Aim 1)
- Willing to comply with study activities
- Have a reliable smartphone or text-message capable device for e-diary reminders and completion
- Regular menses (21-35d) when not on hormonal contraception
- For the hormonal contraception cohort, use of the LNG IUD, ENG implant, or COC
- For the naturally-cycling cohort, use of any non-hormonal method of contraception, including: self or partner permanent contraception, copper IUD, abstinence, barrier methods, and fertility awareness methods
You may not qualify if…
- Current pregnancy
- Breastfeeding without resumption of 2 normal menses
- Desires starting, stopping or switching hormonal contraception during the 12-week study timeframe
- History of hysterectomy
- Menopausal (no menses for 12+months when not on hormonal contraception
- Use of systemic gender-affirming hormone therapy (e.g. testosterone)
- Indeterminant or microscopic colitis
- Participation in any other clinical trials during this study timeline
Where it is running
- University of Utah — Salt Lake City, Utah, United States
Full record on ClinicalTrials.gov
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