The Global Angelman Syndrome Registry

Recruiting now

Conditions studied: Angelman Syndrome

In brief

The Global Angelman Syndrome Registry is an online patient organisation driven registry to collect information about the natural history of children and adults with Angelman Syndrome. The registry will facilitate 1) recruitment for clinical trials into therapies and interventions to benefit participants with Angelman Syndrome and their families, and 2) advancement of research and best standards of care for Angelman Syndrome. The registry is currently available in English, Spanish, Traditional Chinese, Italian, Polish, Hindi, and Brazilian Portuguese.

Key facts

Study ID

NCT05293184

Run by

Foundation for Angelman Syndrome Therapeutics, Australia

People needed

5000

Starts

2016-09-28

Expected to finish

2099-12-31

Last updated by the study team

2024-02-23

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Diagnosis of Angelman Syndrome

Where it is running

• Queensland University of Technology — Brisbane, Queensland, Australia (enrolling)

Full record on ClinicalTrials.gov

Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.