Making HD Voices Heard

Completed

Conditions studied: Huntington Disease

In brief

The Pilot Study, Making HD Voices Heard, will ask people living with HD to report what they experience and how they function.

Key facts

Study ID

NCT05268029

Run by

Huntington Study Group

People needed

698

Starts

2022-03-23

Expected to finish

2023-10-11

Last updated by the study team

2023-10-12

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Adults age 18 years and older
• Willing and able to provide informed consent electronically.
• Individuals answering as a participant must self-report they have been diagnosed with HD by a doctor.
• Ability to answer online questions or direct someone else to enter answers for them.
• Ability to ambulate independently and take care of some of his or her personal needs.
• Ability to read and understand English.
• Willing to create a unique identifier based on personal demographic information.
• Residing in the United States or its territories
• Owning or having access to an electronic device and secure internet connectivity

You may not qualify if…

• An individual who does not meet all the inclusion criteria will be excluded from participation in this study.

Where it is running

• Huntington Study Group — Rochester, New York, United States

Full record on ClinicalTrials.gov

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