Data Collection of Patients With Rare Bone Diseases
Recruiting now
Conditions studied: Skeletal Dysplasia
In brief
RD-DATA is a retrospective and prospective data collection, finalized for care and research purposes. It is articulated in main sections - strongly related and mutually dependent on each other - corresponding to different data domains: personal information, clinical data, genetic data, genealogical data, surgeries, etc. This approach has been developed to corroborate and integrate data from different sources and evaluating several aspects of the diseases and to correlate genetic background and phenotypic outcomes, in order to better investigate diseases pathophysiology. Due to legal requirements, institutional directives and organizational issues, we are unable to include individuals residing outside Italy in the registry at this time. We are currently engaged in the preparation of a recruitment process for individuals residing outside Italy.
Key facts
- Study ID
- NCT05247645
- Run by
- Luca Sangiorgi
- People needed
- 1000
- Starts
- 2020-10-10
- Expected to finish
- 2045-10-09
- Last updated by the study team
- 2025-11-20
Who can join
Age: any. Sex: any. Healthy volunteers: not accepted.
You may qualify if…
- All patients affected by rare diseases with predominantly skeletal involvement
You may not qualify if…
- Any condition unrelated to rare diseases with predominantly skeletal involvement
Where it is running
- Irccs Istituto Ortopedico Rizzoli — Bologna, Emilia-Romagna, Italy (enrolling)
Full record on ClinicalTrials.gov
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