Community Outreach for Palliative Engagement -- Parkinson Disease
Running, not enrolling · Not applicable
Conditions studied: Parkinson Disease Dementia, Parkinson Disease, Parkinson's Disease and Parkinsonism, Lewy Body Parkinsonism, Dementia With Lewy Bodies, Progressive Supranuclear Palsy, Corticobasal Degeneration, Multiple System Atrophy, Vascular Parkinsonism
In brief
The purpose of this study is to learn more about the effectiveness of palliative care training for community physicians and telemedicine support services for patients and carepartners with Parkinson's disease and Lewy Body Dementia (LBD) or related conditions and their care partners. Palliative care is a treatment approach focused on improving quality of life by relieving suffering in the areas of physical symptoms such as pain, psychiatric symptoms such as depression, psychosocial issues and spiritual needs. Telemedicine is the use of technology that allows participants to interact with a health care provider without being physically near the provider.
Key facts
- Study ID
- NCT05222386
- Run by
- University of Rochester
- People needed
- 632
- Starts
- 2022-04-26
- Expected to finish
- 2026-12-31
- Last updated by the study team
- 2026-03-06
Who can join
Age: 40 and older. Sex: any. Healthy volunteers: accepted.
You may qualify if…
- PATIENT INCLUSION CRITERIA:
- Over age 40 years and diagnosed with PD or other causes of parkinsonism, such as progressive supranuclear palsy, multiple system atrophy and Lewy Body Dementia by their community neurologist.
You may not qualify if…
- PATIENT EXCLUSION CRITERIA:
- Potential patient subjects who are unable or unwilling to commit to study procedures
- Presence of additional medical illnesses which requires palliative services (e.g. metastatic cancer)
- Already receiving palliative care or hospice services.
Where it is running
- University of Rochester Medical Center for Health + Technology — Rochester, New York, United States
Full record on ClinicalTrials.gov
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