Inspiring New Science In Guiding Healthcare in Turner Syndrome Registry

Recruiting now

Conditions studied: Turner Syndrome

In brief

INSIGHTS is a registry research study that collects key information on medical history for girls and women with Turner syndrome and the clinical care they receive. This includes genetic tests, imaging, medications, and more for hundreds of patients seen at a number of clinics across the US. In addition to learning a lot about the current state of health for individuals with TS, INSIGHTS serves as an infrastructure to conduct future studies are meaningful to patients and their families.

Key facts

Study ID

NCT05052606

Run by

University of Colorado, Denver

People needed

5000

Starts

2020-05-20

Expected to finish

2025-10-01

Last updated by the study team

2024-10-01

Who can join

Age: any. Sex: female. Healthy volunteers: not accepted.

You may qualify if…

• Individuals with TS and TS variants as defined by the TS Clinical Practice Guideline definition (karyotype consistent with TS, phenotypic female, clinical feature(s) of TS)
• Informed consent/assent as appropriate

You may not qualify if…

• a. Lack of a TS diagnosis on file

Where it is running

• Children's Hospital Colorado — Aurora, Colorado, United States (enrolling)
• Children's National — Washington D.C., District of Columbia, United States (enrolling)
• Lurie Children's — Glenview, Illinois, United States (enrolling)
• University of Kansas — Lawrence, Kansas, United States (enrolling)
• UNC Hospitals Children's Specialty Clinic — Chapel Hill, North Carolina, United States (enrolling)
• Cincinnati Children's Hospital Medical Center — Cincinnati, Ohio, United States (enrolling)
• Nationwide Childern's Hospital — Columbus, Ohio, United States (enrolling)
• Children's Hospital of Philadelphia — Philadelphia, Pennsylvania, United States (enrolling)
• The University of Texas Health Science Center at Houston — Houston, Texas, United States (enrolling)
• Seattle Children's — Seattle, Washington, United States (enrolling)

Full record on ClinicalTrials.gov

Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.