CureDuchenne Link®: A Resource for Research

Completed

Conditions studied: Duchenne Muscular Dystrophy, Becker Muscular Dystrophy

In brief

CureDuchenne link is a data hub comprised of integrated biospecimens, clinical data, and self- and/or caregiver-reported information from participants. Anyone over 4 weeks old who has been diagnosed with DMD or BMD or who is a carrier of DMD or BMD can join. Parents or legal guardians can sign up their child(ren).

Key facts

Study ID

NCT04972604

Run by

CureDuchenne

People needed

240

Starts

2021-07-09

Expected to finish

2025-12-12

Last updated by the study team

2026-07-24

Who can join

Age: 0 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Any of the following are true:
• Currently has a confirmed diagnosis of DMD/BMD based on genetic testing, muscle biopsy, or clinical diagnosis.
• Currently has a confirmed diagnosis of carrier status for DMD/BMD based on genetic testing.
• Parent/guardian (for minor participants) or participant gives informed consent and/or assent as required by local regulations.
• Is age 4 weeks or older at the time of consent.

You may not qualify if…

• Is a foster child or ward of the state.
• Is a prisoner.

Where it is running

• Arkansas Children's Hospital — Little Rock, Arkansas, United States
• CureDuchenne — Newport Beach, California, United States
• Children's Hospital of Orange County — Orange, California, United States
• Rare Disease Research — Atlanta, Georgia, United States
• University of Iowa — Iowa City, Iowa, United States
• Kansas University Clinical Research Center — Fairway, Kansas, United States
• Corewell Health — Grand Rapids, Michigan, United States
• Rare Disease Research Center — Hillsborough, North Carolina, United States
• Penn State Health — Hershey, Pennsylvania, United States
• Neurology Rare Disease Center — Denton, Texas, United States

Full record on ClinicalTrials.gov

Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.