Child and Adolescent Registry for Participants With Narcolepsy

Recruiting now

Conditions studied: Narcolepsy

In brief

CATNAP is a patient registry designed to improve the understanding of the natural history of narcolepsy in pediatric patients. Descriptive statistics on disease characteristics will be performed. The study has 16 active clinical sites and a virtual site that widens participation to anywhere in the United States. For more information about the study or to access the Online Patient Enrollment System, visit the CATNAP website: https://catnap.healthie.net/welcome or email catnap@pulseinfoframe.com. The Online Patient Enrollment System, CATNAP website, can also be found in the references section.

Key facts

Study ID

NCT04899947

Run by

Jazz Pharmaceuticals

People needed

500

Starts

2020-10-10

Expected to finish

2024-10-01

Last updated by the study team

2024-08-15

Who can join

Age: any, up to 17. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Any child or adolescent with a physician-confirmed diagnosis of narcolepsy
• Age less than 18 years
• Willing to participate in the Registry and complete the informed consent form
• Able to participate in English based registry

You may not qualify if…

• Age 18 years or more
• Fail to complete the informed consent form

Where it is running

• Northwell Health — Manhasset, New York, United States (enrolling)
• Cincinnati Children's Hospital Medical Center — Cincinnati, Ohio, United States (enrolling)
• University Hospitals Cleveland Medical Centre (UHCMC) — Cleveland, Ohio, United States (enrolling)
• University of South Florida — Tampa, Florida, United States (enrolling)
• Ohio Sleep Medicine Institute — Dublin, Ohio, United States (enrolling)
• Geisinger — Danville, Pennsylvania, United States (enrolling)
• Children's Hospital of Philadelphia — Philadelphia, Pennsylvania, United States (enrolling)
• Texas Children's Hospital (Baylor College of Medicine) — Houston, Texas, United States (enrolling)
• Children's Hospital of the King's Daughters — Norfolk, Virginia, United States (enrolling)
• Stanford University — Redwood City, California, United States (enrolling)
• University of California San Diego — San Diego, California, United States (enrolling)
• Boston Children's Hospital — Boston, Massachusetts, United States (enrolling)
• University of Arizona — Tucson, Arizona, United States (enrolling)
• Arkansas Children's Research Institute — Little Rock, Arkansas, United States (enrolling)
• St. Luke's Hospital — Chesterfield, Missouri, United States (enrolling)
• Children's Mercy Hospital — Kansas City, Missouri, United States (enrolling)
• Trinity Health-Michigan — Grand Rapids, Michigan, United States
• University of Arkansas — Fayetteville, Arkansas, United States
• Children's National Medical Center — Washington D.C., District of Columbia, United States
• Children's Research Institute — Washington D.C., District of Columbia, United States
• Lurie Children's Hospital of Chicago — Chicago, Illinois, United States
• Johns Hopkins University — Baltimore, Maryland, United States
• Phoenix Children's Hospital — Phoenix, Arizona, United States
• Mayo Clinic — Rochester, Michigan, United States
• Nationwide Children's Hospital — Columbus, Ohio, United States

Full record on ClinicalTrials.gov

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