ELEVATE, a Registry of Patients With Acute Hepatic Porphyria (AHP)
Recruiting now
Conditions studied: Acute Hepatic Porphyria
In brief
This global patient registry is being conducted to characterize the natural history and real-world clinical management of patients with AHP, and to further characterize the real-world safety and effectiveness of givosiran and other approved AHP therapies.
Key facts
- Study ID
- NCT04883905
- Run by
- Alnylam Pharmaceuticals
- People needed
- 150
- Starts
- 2021-04-26
- Expected to finish
- 2027-04-01
- Last updated by the study team
- 2026-04-27
Who can join
Age: 12 and older. Sex: any. Healthy volunteers: not accepted.
You may qualify if…
- Documented diagnosis of AHP, per physician's determination
You may not qualify if…
- Currently enrolled in a clinical trial for any investigational agent
Where it is running
- Clinical Trial Site — London, United Kingdom (enrolling)
- Clinical Trial Site — Gilbert, Arizona, United States (enrolling)
- Clinical Trial Site — San Francisco, California, United States (enrolling)
- Clinical Trial Site — Baltimore, Maryland, United States (enrolling)
- Clinical Trial Site — Boston, Massachusetts, United States (enrolling)
- Clinical Trial Site — Minneapolis, Minnesota, United States (enrolling)
- Clinical Trial Site — New York, New York, United States (enrolling)
- Clinical Trial Site — Cardiff, United Kingdom (enrolling)
- Clinical Trial Site — Birmingham, Alabama, United States (enrolling)
- Clinical Trial Site — Oklahoma City, Oklahoma, United States (enrolling)
- Clinical Trial Site — Galveston, Texas, United States (enrolling)
- Clinical Trial Site — Salt Lake City, Utah, United States (enrolling)
- Clinical Trial Site — Seattle, Washington, United States (enrolling)
- Clinical Trial Site — Brussels, Belgium (enrolling)
- Clinical Trial Site — Leuven, Belgium (enrolling)
- Clinical Trial Site — Bordeaux, France (enrolling)
- Clinical Trial Site — Paris, France (enrolling)
- Clinical Trial Site — Toulouse, France (enrolling)
- Clinical Trial Site — Berlin, Germany (enrolling)
- Clinical Trial Site — Chemnitz, Germany (enrolling)
- Clinical Trial Site — Würzburg, Germany (enrolling)
- Clinical Trial Site — Milan, Italy (enrolling)
- Clinical Trial Site — Modena, Italy (enrolling)
- Clinical Trial Site — Madrid, Spain (enrolling)
- Clinical Trial Site — Stockholm, Sweden (enrolling)
Full record on ClinicalTrials.gov
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