Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor

Recruiting now

Conditions studied: Desmoplastic Small Round Cell Tumor

In brief

This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease. The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.

Key facts

Study ID

NCT04690374

Run by

Memorial Sloan Kettering Cancer Center

People needed

250

Starts

2020-12-22

Expected to finish

2027-12-01

Last updated by the study team

2026-01-12

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Participants must have a diagnosis of desmoplastic small round cell tumor
• Participants may be of any age as long as the appropriate consent and assent may be obtained
• Willing to provide historical and longitudinal clinical data

You may not qualify if…

• Participant unwilling to provide consent or share historical and longitudinal clinical data

Where it is running

• Memorial Sloan Kettering Cancer Center (All Protocol Activities) — New York, New York, United States (enrolling)

Full record on ClinicalTrials.gov

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