REgiStry Of the NAtural History of recurreNt periCarditis in pEdiatric and Adult Patients
Running, not enrolling
Conditions studied: Recurrent Pericarditis
In brief
The registry will focus on furthering the understanding of the natural history of recurrent pericarditis (RP), as well as document RP-related clinical, health-related quality of life (HRQoL), and economic burden and will assist the medical community to refine or develop data-driven recommendations for clinical management of RP patients to optimize clinical outcomes. It also aims to generate data in support of the impact of rilonacept on clinical outcomes in a real-world population.
Key facts
- Study ID
- NCT04687358
- Run by
- Kiniksa Pharmaceuticals International, plc
- People needed
- 500
- Starts
- 2021-03-16
- Expected to finish
- 2029-03-01
- Last updated by the study team
- 2026-02-17
Who can join
Age: 7 and older. Sex: any. Healthy volunteers: not accepted.
Where it is running
- Alaska Heart & Vascular Institute — Anchorage, Alaska, United States
- Pima Heart and Vascular — Tucson, Arizona, United States
- University of California San Diego Medical Center — La Jolla, California, United States
- Cedars-Sinai Medical Center — Los Angeles, California, United States
- Scripps Health — San Diego, California, United States
- Northwestern University — Chicago, Illinois, United States
- Midwest Cardiovascular Research Foundation — Davenport, Iowa, United States
- Johns Hopkins University — Baltimore, Maryland, United States
- Massachusetts General Hospital — Boston, Massachusetts, United States
- Brigham and Women's Hospital — Boston, Massachusetts, United States
- Detroit Medical Center — Detroit, Michigan, United States
- Minneapolis Heart Institute Foundation — Minneapolis, Minnesota, United States
- Mayo Clinic - PPDS — Rochester, Minnesota, United States
- Barnes-Jewish Hospital/Washington University — St Louis, Missouri, United States
- University of Nebraska — Omaha, Nebraska, United States
- TKL Research Inc. — Fair Lawn, New Jersey, United States
- NYU Langone Health — New York, New York, United States
- Northwell Health - Lenox Hill Hospital — New York, New York, United States
- The Linder Research Center at The Christ Hospital — Cincinnati, Ohio, United States
- Cleveland Clinic — Cleveland, Ohio, United States
- Legacy Medical Group, Cardiology — Portland, Oregon, United States
- Carnegie Mellon University, Allegheny Health Network, Allegheny General Hospital — Pittsburgh, Pennsylvania, United States
- University of Texas Southwestern Medical Center — Dallas, Texas, United States
- Houston Methodist Hospital — Houston, Texas, United States
- University of Utah — Salt Lake City, Utah, United States
Full record on ClinicalTrials.gov
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