VIsual Cerebral ConnecTivity On Functional Magnetic Resonance Imaging in Patients With Hereditary REtinal Dystrophies
Recruiting now
Conditions studied: Vision Functional Brain Networks in Patients With Hereditary Retinal Dystrophies
In brief
The Rothschild Foundation A Hospital follows a cohort of approximately 300 patients with hereditary retinal dystrophy. These patients are followed in ophthalmology consultation every year. In order to plan the MRI on the day of the annual consultation and to avoid additional travel for patients, patients will be informed of the study before the consultation (transmission of an information letter and the information note from study). If patients agree to participate in the study, rMRI will be scheduled. During the follow-up ophthalmologic consultation, after checking the inclusion and non-inclusion criteria, the study information will be repeated, and patients who still agree to participate will sign the study consent.
Key facts
- Study ID
- NCT04648124
- Run by
- Fondation Ophtalmologique Adolphe de Rothschild
- People needed
- 200
- Starts
- 2021-01-04
- Expected to finish
- 2028-07-01
- Last updated by the study team
- 2026-01-05
Who can join
Age: 18 and older. Sex: any. Healthy volunteers: not accepted.
You may qualify if…
- Patient over 18 years old
- Diagnostic clinique de dystrophie rétinienne héréditaire ou maculopathie héréditaire, syndromique ou non syndromique
- Artificial vision treatment such as a retinal implant, or optogenetics scheduled in the next 6 months
- Express consent to participate in the study
- Affiliate or beneficiary of a social security scheme
You may not qualify if…
- Patient benefiting from a legal protection measure
- Pregnant or breastfeeding woman
- Contraindication to MRI (claustrophobia, implanted equipment such as pacemaker).
- Other additional ocular pathology that can significantly affect vision
- Recent eye surgery less than 3 months old
Where it is running
- Fondation Adolphe de Rothschild — Paris, PARIS, France (enrolling)
Full record on ClinicalTrials.gov
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