Engaging and Activating Cancer Survivors in Genetic Services Study
Completed · Not applicable
Conditions studied: Cancer
In brief
To address the gap in access to genetic services, this study will evaluate the effectiveness of an adapted model of remote delivery of genetic services to increase the uptake of recommended genetic assessment and testing in childhood cancer survivors.
Key facts
- Study ID
- NCT04455698
- Run by
- University of Chicago
- People needed
- 391
- Starts
- 2021-08-16
- Expected to finish
- 2025-12-31
- Last updated by the study team
- 2026-02-10
Who can join
Age: 18 and older. Sex: any. Healthy volunteers: accepted.
You may qualify if…
- Able to understand and communicate in English or Spanish
- Currently residing in the US
- Childhood Cancer Survivor Study Participant survivors of the following primary cancers:
- CNS tumor
- Sarcoma (except Ewing sarcoma)
- Hepatoblastoma
- Leukemia
- Childhood Cancer Survivor Study Participant with a family history of a child with cancer:
- 2 or more malignancies in childhood (age 18 or younger)
- A first degree relative (parent or sibling) with cancer aged 45 or younger
- 2 or more second degree relatives with cancer aged 45 or younger (same side of family)
- Parents of the child with cancer are related (consanguinity)
- Other family history that meets NCCN criteria
- Able to communicate remotely through remote telegenetic platforms (phone or videoconference) with genetic counselors
You may not qualify if…
- Uncorrected or uncompensated speech defects that would lead to the participant being unable to communicate effectively with genetic counselor
- Currently residing in a US state or territory where genetic counselors are not licensed to provide care
- Uncontrolled psychiatric/mental condition or severe physical, neurological or cognitive deficits rendering individual unable to understand study goals and task
- Participants who have already completed and received a clinically appropriate multi-gene panel genetic testing
Where it is running
- University of Chicago Medical Center — Chicago, Illinois, United States
- University of Pennsylvania — Philadelphia, Pennsylvania, United States
- St Jude Children's Research Hospital — Memphis, Tennessee, United States
Full record on ClinicalTrials.gov
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