UCSF PANC Cyst Registry
Recruiting now
Conditions studied: Pancreatic Cyst, Pancreatic Neoplasms, Pancreatic Cancer, Pancreatic Diseases, Pancreatic Intraductal Papillary Mucinous Neoplasm, Intraductal Papillary Mucinous Neoplasm, Pancreatic Ductal Adenocarcinoma, Mucinous Cyst
In brief
Pancreatic cysts are found incidentally on 15-50% of CT and MRIs for all indications and their prevalence is increasing. Many of these cysts may be precursors to pancreatic cancer, and thus pose a substantial risk, however, the vast majority are benign. Increased detection of pancreatic cysts provides an opportunity to diagnose pancreatic malignancy at an early, curable stage yet also increases the potential to over-treat clinically insignificant lesions. This presents a clinical challenge to prevent unnecessary resection of indolent disease, with associated risks of infections, bleeding, diabetes, and costly disability. Unfortunately, there is little information on the epidemiology and natural history of pancreatic cysts to help guide management.
Key facts
- Study ID
- NCT04291651
- Run by
- University of California, San Francisco
- People needed
- 4000
- Starts
- 2019-10-08
- Expected to finish
- 2030-01-01
- Last updated by the study team
- 2025-09-18
Who can join
Age: 18 and older. Sex: any. Healthy volunteers: not accepted.
You may qualify if…
- The inclusion criteria for this study are intentionally broad. Eligible patients for prospective enrollment will include
- Adults ≥ 30 years of age
- Have a radiographic or endoscopic diagnosis of at least one pancreatic cysts regardless of treatment status,
- No history of pancreatic cancer,
- Can speak and read English,
- Have access to a computer or mobile device (\~95% of U.S. population); and
- Are able to complete an electronic informed consent.
You may not qualify if…
- Patients who don't speak English,
- Don't have access to a computer or mobile device; or
- Patients who have a cancer diagnosis.
Where it is running
- University of California, San Francisco — San Francisco, California, United States (enrolling)
Full record on ClinicalTrials.gov
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