Aftercare of Childhood Cancer Survivors in Switzerland
Recruiting now
Conditions studied: Childhood Cancer, Survivorship, Transition
In brief
The Aftercare of Childhood Cancer Survivors in Switzerland (ACCS) study is a multicenter cohort study designed to investigate transition of follow-up care from pediatric oncology to adult care in a prospective and longitudinal way. The investigators collect data on preferences and expectations for follow-up care and transition to adult care by questionnaires in adolescent and young adult survivors of childhood cancer.
Key facts
- Study ID
- NCT04284189
- Run by
- Kantonsspital Aarau
- People needed
- 140
- Starts
- 2019-02-12
- Expected to finish
- 2030-08-01
- Last updated by the study team
- 2022-08-17
Who can join
Age: 16 and older. Sex: any. Healthy volunteers: not accepted.
You may qualify if…
- 5-year survivor of childhood cancer
- Diagnosis according to ICCC3 I-XII; Langerhans cell histiocytosis (LCH), Hemophagocytic lymphohistiocytosis (HLH)
- Age at diagnosis <18 years
- Age at study ≥16 years
- At study start in follow-up care at one of the three pediatric oncology centers (group before transition) or transitioned not before 2014 (group after transition).
- Written informed consent
You may not qualify if…
- Treatment only by means of surgery and without increased risk of late effects (e.g. teratoma)
- <5 years after therapy of a relapse or palliative situation
- Severe cognitive impairment, which makes it impossible to complete the questionnaire independently
- Insufficient knowledge of the German language
- Informed consent form not signed
Where it is running
- Division of Oncology - Hematology, Department of Pediatrics, Kantonsspital Aarau — Aarau, Switzerland (enrolling)
- Division of Oncology/ Hematology, University Children's Hospital Basel — Basel, Switzerland (enrolling)
- Division of Oncology/ Hematology, Department of Pediatrics, Kantonsspital Lucerne — Lucerne, Switzerland (enrolling)
Full record on ClinicalTrials.gov
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