Research Engagement With People With Intellectual and Developmental Disabilities

Completed · Not applicable

Conditions studied: Intellectual Disability, Developmental Disability, Chronic Conditions, Multiple

In brief

The objectives of this project are to to build sustainable regional communities of Intellectual or Developmental Disabilities (IDD) stakeholders to provide ongoing input to research priorities, methodological processes, and relevant person-centered health outcomes; leverage existing Special Olympic infrastructure to nationally disseminate the toolkit in order to increase participation and engagement in research and improve health outcomes; conduct comparative effectiveness trials that incorporate people with IDD focusing on their research priorities.

Key facts

Study ID

NCT04182347

Run by

University of Wisconsin, Madison

People needed

57

Starts

2020-01-01

Expected to finish

2020-10-31

Last updated by the study team

2020-12-09

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• Individuals with Intellectual or Developmental Disabilities (IDD)
• Caregiver or family member of the individual with IDD
• Patients/consumer
• Clinician
• Complete informed consent or assent

Where it is running

• Waisman Center — Madison, Wisconsin, United States

Full record on ClinicalTrials.gov

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