Alpha-1 Research Registry

Recruiting now

Conditions studied: Alpha 1-Antitrypsin Deficiency

In brief

The Alpha-1 Research Registry is a confidential database made up of individuals diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1) and individuals identified as Alpha-1 carriers. The Registry was established to facilitate research initiatives and promote the development of improved treatments and a cure for Alpha-1.

Key facts

Study ID

NCT04157049

Run by

Alpha-1 Foundation

People needed

4000

Starts

2019-06-20

Expected to finish

2029-06-20

Last updated by the study team

2024-01-30

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Patients diagnosed with Alpha-1 Antitrypsin Deficiency (PiZZ, PiZNull, PiSZ etc.)
• Alpha-1 carriers (PiMZ, PiMS etc.)

You may not qualify if…

• Failure to provide informed consent
• Normal healthy individuals (MM)

Where it is running

• Alpha-1 Foundation — Coral Gables, Florida, United States (enrolling)

Full record on ClinicalTrials.gov

Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.