Registry of Osteogenesis Imperfecta
Recruiting now
Conditions studied: Osteogenesis Imperfecta
In brief
ROI is a retrospective and prospective registry, finalized for care and research purposes. It is articulated in main sections - strongly related and mutually dependent on each other - corresponding to different data domains: personal information, clinical data, genetic data, genealogical data, surgeries, etc. This approach has been developed to corroborate and integrate data from different sources evaluating several aspects of diseases and to correlate genetic background and phenotypic outcomes, in order to better investigate diseases pathophysiology. Due to legal requirements, institutional directives and organizational issues, we are unable to include individuals residing outside Italy in the registry at this time. We are currently engaged in the preparation of a recruitment process for individuals residing outside Italy.
Key facts
- Study ID
- NCT04115774
- Run by
- Luca Sangiorgi
- People needed
- 5000
- Starts
- 2013-06-28
- Expected to finish
- 2032-02-29
- Last updated by the study team
- 2025-11-20
Who can join
Age: any. Sex: any. Healthy volunteers: accepted.
You may qualify if…
- All Osteogenesis Imperfecta patients, including prenatal and fetal diagnosis of Osteogenesis Imperfecta
You may not qualify if…
- Any condition unrelated to Osteogenesis Imperfecta
Where it is running
- Irccs Istituto Ortopedico Rizzoli — Bologna, Emilia-Romagna, Italy (enrolling)
Full record on ClinicalTrials.gov
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