Health Equity: Advance Care Planning for Spanish Speaking Teens With Cancer-1st Resubmission
Completed · Not applicable
Conditions studied: Cancer
In brief
Pediatric ACP (Advance Care Planning) (pACP) (1) Supports communication with children/adolescents at any stage of a serious illness in understanding their illness, complications, fears, and hopes, as well as treatment preferences regarding future medical care with their family; (2) Communicates these goals of care and treatment preferences with their physician; and (3) Documents these goals of care and end-of-life treatment preferences. Among adolescents, cancer is the leading cause of disease-related deaths. Survival has improved far less for 15 to 24 year-olds than it has for older patients. About one-fourth will die prematurely. No pediatric Advance Care Planning (pACP) model exists to serve Spanish speaking adolescents with cancer. Objective: To take first steps to implement pACP as a routine, structured intervention in pediatric hospitals with underserved Spanish speaking adolescents living with cancer through timely conversations with their families to relieve suffering (physical, psychological, spiritual) and maximize the quality of life
Key facts
- Study ID
- NCT04095000
- Run by
- Maureen Lyon
- People needed
- 16
- Starts
- 2019-09-12
- Expected to finish
- 2021-08-05
- Last updated by the study team
- 2021-08-09
Who can join
Age: 14 and older, up to 99. Sex: any. Healthy volunteers: not accepted.
Where it is running
- Children's National Medical Center — Washington D.C., District of Columbia, United States
Full record on ClinicalTrials.gov
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