Measuring and Improving Coproduction Using coopeRATE

Stopped early · Not applicable

Conditions studied: Cystic Fibrosis, Chronic Disease

In brief

The purpose of this study is to identify new methods of measuring and improving collaborative goal setting between patients and clinicians in adult cystic fibrosis care.

Key facts

Study ID

NCT04060329

Run by

Dartmouth-Hitchcock Medical Center

People needed

280

Starts

2019-12-02

Expected to finish

2020-03-16

Last updated by the study team

2020-07-09

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Have a diagnosis of cystic fibrosis
• Are 18 years of age or older
• Can read and write in English
• Are attending a participating site for a routine cystic fibrosis care visit
• Have already consented to participate in the Cystic Fibrosis Foundation Patient Registry
• Allow study researchers to access their Cystic Fibrosis Foundation Patient Registry information and link it to their study data
• Have not previously participated in the study

You may not qualify if…

• Do not have a diagnosis of cystic fibrosis
• Are less than 18 years of age
• Cannot read and write in English
• Are not attending a participating site for a routine cystic fibrosis care visit
• Have not already consented to participate in the Cystic Fibrosis Foundation Patient Registry
• Do not allow study researchers to access their Cystic Fibrosis Foundation Patient Registry information and link it to their study data
• Have previously participated in the study

Where it is running

• University of California San Diego — San Diego, California, United States
• National Jewish Health — Denver, Colorado, United States
• University of Kansas Medical Center — Kansas City, Kansas, United States
• Boston Children's Hospital — Boston, Massachusetts, United States
• University of Nebraska Medical Center / Nebraska Medical Center — Omaha, Nebraska, United States
• Dartmouth-Hitchcock Medical Center / Dartmouth-Hitchcock Manchester — Lebanon, New Hampshire, United States
• University of Pittsburgh Medical Center — Pittsburgh, Pennsylvania, United States
• University of Texas Southwestern Medical Center — Dallas, Texas, United States
• University of Virginia — Charlottesville, Virginia, United States

Full record on ClinicalTrials.gov

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