ATHN 11: Liver Transplantation Outcomes Study
Completed
Conditions studied: Hemophilia A and B, Liver Transplantation
In brief
This study is designed as a multi-center, observational cohort study of participants with hemophilia A and B who have and have not undergone liver transplantation. Participants will be asked to complete health related quality of life questionnaires and provide medical history.
Key facts
- Study ID
- NCT04055051
- Run by
- American Thrombosis and Hemostasis Network
- People needed
- 86
- Starts
- 2020-06-18
- Expected to finish
- 2022-12-01
- Last updated by the study team
- 2023-05-10
Who can join
Age: 18 and older. Sex: any. Healthy volunteers: not accepted.
You may qualify if…
- Participants who meet the following inclusion criteria are eligible for enrollment into the study:
- Congenital hemophilia A or B of any severity, who have and have not undergone a liver transplant;
- Age > 18; and
- Sex assigned at birth was male
You may not qualify if…
- Participants who fall into any of the following exclusion criteria at the time of screening are not eligible for enrollment into the study:
- Age <18.
Where it is running
- Orthopaedic Institute for Children Hemophilia Program — Los Angeles, California, United States
- University of California, San Francisco — San Francisco, California, United States
- Bleeding and Clotting Disorders Institute — Peoria, Illinois, United States
- Indiana Hemophilia and Thrombosis Center (IHTC) — Indianapolis, Indiana, United States
- Maine Hemophilia and Thrombosis Center — Scarborough, Maine, United States
- Henry Ford Health System — Detroit, Michigan, United States
- Mayo Comprehensive Hemophilia Center — Rochester, Minnesota, United States
- Mary M. Gooley Hemophilia Center, Inc. — Rochester, New York, United States
- Comprehensive Hemophilia Treatment Center, University of North Carolina at Chapel Hill — Chapel Hill, North Carolina, United States
- Ohio State University Medical Center Hemophilia Treatment Center — Columbus, Ohio, United States
- University of Pittsburgh — Pittsburgh, Pennsylvania, United States
- Gulf States Hemophilia and Thrombophilia Center — Houston, Texas, United States
- Utah Center for Bleeding and Clotting Disorders — Salt Lake City, Utah, United States
- Hemophilia Outreach Center Green Bay — Green Bay, Wisconsin, United States
- Comprehensive Center for Bleeding Disorders, Milwaukee — Milwaukee, Wisconsin, United States
Full record on ClinicalTrials.gov
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