iPeer2Peer Program for Youth With Sickle Cell Disease

Status unconfirmed · Not applicable

Conditions studied: Sickle Cell Disease

In brief

The iPeer2Peer Sickle Cell Disease (SCD) study matches youth (12-18 years of age) with SCD to a mentor (trained young adult) who has learned to manage their SCD well, transitioned to adult care, and can support youth participants emotionally and socially. Participants will be randomly assigned one of two groups, either (1) The intervention group: Study group participants are matched with a mentor for 15 weeks, and are expected to have up to ten calls with one another; (2) The control group: This study group will be on a 15 week waitlist to receive a mentor. This study will first assess the feasibility of conducting this research with youth with SCD. Also, this study will assess the preliminary effectiveness of peer mentorship by comparing various health outcomes of the two study groups post-intervention.

Key facts

Study ID

NCT03989986

Run by

The Hospital for Sick Children

People needed

28

Starts

2020-01-01

Expected to finish

2024-12-31

Last updated by the study team

2024-04-17

Who can join

Age: 12 and older, up to 18. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Aged 12-18 years old
• Diagnosed with SCD by a haematologist
• Able to speak and read English
• Access to Internet connection with computer capable of using free Skype software
• Willing and able to complete online measures.

You may not qualify if…

• Significant cognitive impairments
• Major co-morbid illnesses (medical or psychiatric conditions) likely to influence HRQoL assessment
• Currently participating in other peer support or self-management interventions.

Where it is running

• Connecticut Children's Medical Center — Hartford, Connecticut, United States
• Children's Hospital of Eastern Ontario (CHEO) — Ottawa, Ontario, Canada
• The Hospital for Sick Children — Toronto, Ontario, Canada
• Jim Pattison — Saskatoon, Saskatchewan, Canada

Full record on ClinicalTrials.gov

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