The FOrMe Registry (The German Focal Segmental Glomerulosclerosis and Minimal Change Disease Registry)
Recruiting now
Conditions studied: Glomerulosclerosis, Focal Segmental, Minimal Change Disease, Idiopathic Nephrotic Syndrome
In brief
In a monocentric, later multicentric prospective approach the FOrMe registry (The German Focal Segmental Glomerulosclerosis and Minimal Change Disease Registry) aims to generate a longitudinal cohort of 150 pediatric cases of idiopathic nephrotic syndrome and 350 adult cases of biopsy-proven Minimal Change Disease (MCD) or Focal and Segmental Glomerular Sclerosis (FSGS) over 10 years. The registry will provide a repository for biomaterials such as blood samples, DNA, urine, feces, and tissue biopsies that will be accessible to collaborators to facilitate future research on pathogenesis, diagnostics, and treatment.
Key facts
- Study ID
- NCT03949972
- Run by
- Prof. Dr. Paul Brinkkoetter
- People needed
- 500
- Starts
- 2018-04-01
- Expected to finish
- 2033-03-31
- Last updated by the study team
- 2025-09-17
Who can join
Age: any. Sex: any. Healthy volunteers: not accepted.
Where it is running
- Klinikum Stuttgart — Stuttgart, Germany (enrolling)
- University Hospital Münster — Münster, Germany (enrolling)
- University Hospital of Cologne — Cologne, North Rhine-Westphalia, Germany (enrolling)
- Charité University Hospital — Berlin, Germany (enrolling)
- Kindernierenzentrum Bonn — Bonn, Germany (enrolling)
- Kindernephrologie Dachau — Dachau, Germany (enrolling)
- University Hospital Essen — Essen, Germany (enrolling)
- University Hospital Heidelberg — Heidelberg, Germany (enrolling)
- Klinikum St. Georg — Leipzig, Germany (enrolling)
- University Hospital Marburg — Marburg, Germany (enrolling)
- Uniklinik RWTH Aachen — Aachen, Germany
- University Hospital Erlangen — Erlangen, Germany
Full record on ClinicalTrials.gov
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