Acceptability of Palliative Care in Parkinson Disease Care

Completed · Not applicable

Conditions studied: Parkinson Disease

In brief

This study will assess the feasibility of using specific criteria to standardize the referral of individuals with Parkinson disease to a group of medical providers known as palliative care specialists. Palliative care specialists provide supportive care to individuals living with serious illnesses. The specialty focuses on providing relief from the symptoms and stress of serious illness.

Key facts

Study ID

NCT03697434

Run by

University of Rochester

People needed

20

Starts

2018-11-16

Expected to finish

2019-06-02

Last updated by the study team

2019-12-09

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Diagnosis of idiopathic PD confirmed as most likely diagnosis with participant's treating provider
• 18 years of age or older
• Participant or care partner able to provide informed consent
• Presence of one or more of the following:
• Uncontrolled symptoms (over prior week):
• Depression
• Pain
• Fatigue
• Critical events (over prior 6 months):
• ≥3 falls
• Unintended weight loss
• Wheelchair dependence (>50% of time)

You may not qualify if…

• Diagnosis of atypical or secondary parkinsonism
• Outpatient palliative care visit scheduled or within the prior 6 months of the screening visit
• Subjects who are care partners:
• Inclusion Criteria:
• Care partner of enrolled participant in the study
• 18 years of age or older
• Able to provide informed consent
• Exclusion Criteria:
• No care partner specific exclusion criteria

Where it is running

• URMC Neurology; 919 Westfall Rd, Building C — Rochester, New York, United States

Full record on ClinicalTrials.gov

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