The Hospice Advanced Dementia Symptom Management and Quality of Life Trial
Completed · Not applicable
Conditions studied: Dementia
In brief
Alzheimer's Disease and Related Disorders (dementia) are a group of serious life limiting illness that cause significant challenges to our public health system, with significant illness burden for both the person with dementia and the caregiver. At the end of life, over 230,000 persons with dementia annually are cared for in hospice, yet hospice agencies are ill prepared to care for this population and often resort to inappropriate pharmacologic measures such as antipsychotics that reduce quality of life rather than improve it. This study will therefore through its two phases refine and then implement, using a pragmatic stepped wedge trial design, the Dementia Symptom Management at Home Program Hospice Edition, with the goal improving quality of care for the person with dementia and their caregiver, reducing antipsychotic use, and increasing bereaved caregiver satisfaction in the hospice setting.
Key facts
- Study ID
- NCT03681119
- Run by
- NYU Langone Health
- People needed
- 83
- Starts
- 2019-02-11
- Expected to finish
- 2019-06-12
- Last updated by the study team
- 2020-08-13
Who can join
Age: 50 and older. Sex: any. Healthy volunteers: not accepted.
You may qualify if…
- Must have dementia as primary diagnosis for admission to hospice
- Must be newly admitted to a participating hospice
- Must be 50 years or older
- Clinicians:
- Must be a skilled clinician or home health aide who provides care through an eligible home health agency
- Must be 18 years or older
You may not qualify if…
- Persons with Dementia:
- None
- Clinicians:
- None
Where it is running
- New York University School of Medicine — New York, New York, United States
Full record on ClinicalTrials.gov
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