Using Patient-Centered Guidelines in a Technology Platform to Improve Health Care in Adults With Sickle Cell Disease

Completed · Not applicable

Conditions studied: Sickle Cell Disease

In brief

SCD is an inherited disorder of hemoglobin that affects over 100,000 Americans, most of whom live in low-resourced neighborhoods. Acute SCD complications result in 230,000 emergency department visits and $1.5 billion annually in acute-care expenditures. Prior research indicates that increased disease-specific knowledge correlates with improved clinical outcomes in SCD. Thus, targeting strategies to improve disease-specific knowledge is a high priority in the care of individuals with SCD. Significant evidence describes how educational materials, including online educational programs, can be used to increase disease-specific knowledge. In this study, the investigators will evaluate a mobile phone technology intervention based on the prior evidence that technologies can improve SCD-specific knowledge.

Key facts

Study ID

NCT03629678

Run by

Vanderbilt University Medical Center

People needed

67

Starts

2018-07-01

Expected to finish

2023-07-01

Last updated by the study team

2025-01-14

Who can join

Age: 18 and older, up to 70. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• receives care at the community health clinic,
• diagnosis of SCD (Hgb SS, SC, Sβ-thal),
• ability to speak and understand written English
• has access to a smartphone or computer
• between 18-70 years.

You may not qualify if…

• lack of access to a smartphone or computer
• inability to speak and understand written English

Where it is running

• The Ohio State University Medical Center — Columbus, Ohio, United States
• Vanderbilt University — Nashville, Tennessee, United States

Full record on ClinicalTrials.gov

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