Evaluating Barriers to Stroke Screening and Prevention in Children With Sickle Cell Disease
Completed
Conditions studied: Stroke Ischemic, Sickle Cell Disease
In brief
DISPLACE is a three part, multi-center U.S. based study to evaluate the barriers to stroke screening and prevention in children with sickle cell anemia (SCA). In the United States, TCD (Transcranial Doppler ultrasound) is a proven method of screening children with SCA for stroke. However, many children are not getting the screening they need. This study will examine the issues that hinder and help children get the screening at 28 different hospitals and sickle cell centers to improve care for all children with sickle cell anemia. The investigators will then plan a study (part 3) aimed to improve stroke screening and prevention in sickle cell anemia.
Key facts
- Study ID
- NCT03621826
- Run by
- Medical University of South Carolina
- People needed
- 5247
- Starts
- 2018-02-12
- Expected to finish
- 2019-06-28
- Last updated by the study team
- 2019-07-11
Who can join
Age: 2 and older, up to 24. Sex: any. Healthy volunteers: not accepted.
You may qualify if…
- Age is >2 and <16 at time of review (from 2012-2016)
- have documented sickle cell anemia
- primary language is English
- patient at a DISPLACE consortium institution
- Caregiver Characteristics:
- Parent or guardian of patient who meets above criteria Primary language is English Has the cognitive capacity to complete questionnaires
You may not qualify if…
- Child Characteristics:
- Experiencing current acute complications of sickle cell disease requiring hospitalization or an acute care visit (e.g., pain crises, acute chest syndrome, acute cerebrovascular events/stroke or active infection/fever)
- Caregiver Characteristics:
- Has a child experiencing current acute complication of sickle cell disease, such as pain crisis, acute chest syndrome, stroke, or infection.
Where it is running
- Medical University of South Carolina — Charleston, South Carolina, United States
Full record on ClinicalTrials.gov
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