The American Society of Hematology (ASH) Research Registry: A Multicenter Research Registry of Patients With Hematologic Disease

Status unconfirmed

Conditions studied: Benign and Malignant Hematologic Diseases

In brief

This is a multicenter, retrospective and prospective, long-term registry of patients with benign or malignant hematologic diseases, whether or not these patients were or were not treated with disease-specific treatments. Information will be collected on patient demographics, disease characteristics, genomic and molecular data, laboratory data, pathology, radiographic reports, clinical status, quality of life, medications, and dosing information. Where appropriate, these data structures may be based on a combination of Fast Healthcare Interoperability Resources (FHIR) , Consolidated-Clinical Data Architecture (C-CDA) and/or client-specific structure definitions.

Key facts

Study ID

NCT03535220

Run by

American Society of Hematology

People needed

20000

Starts

2018-05-10

Expected to finish

2025-01-31

Last updated by the study team

2018-05-24

Who can join

Age: 1 and older, up to 65. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Patients (>18 years of age) must have diagnostically- or investigator-confirmed benign or malignant hematologic disease.
• For prospective data collection efforts within the ASH Registry that require informed consent, children (<18 years of age) with hematologic disease whose parent/legal guardian consents on their behalf may be included.

You may not qualify if…

• Adults that are unable to consent.
• Prisoners

Where it is running

• American Society of Hematology — Washington D.C., District of Columbia, United States

Full record on ClinicalTrials.gov

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