Clinical Procedures to Support Research in ALS

Recruiting now

Conditions studied: Amyotrophic Lateral Sclerosis, ALS-Frontotemporal Dementia, Primary Lateral Sclerosis, Progressive Muscular Atrophy

In brief

The purpose of the Clinical Procedures To Support Research (CAPTURE) study is to utilize information collected in the medical record to learn more about a disease called amyotrophic lateral sclerosis (ALS) and related disorders.

Key facts

Study ID

NCT03489278

Run by

University of Miami

People needed

1200

Starts

2018-02-15

Expected to finish

2034-06-01

Last updated by the study team

2026-06-15

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Diagnosis of ALS or a related disorder (e.g. primary lateral sclerosis, progressive muscular atrophy).
• Receiving care at a clinical center that uses Epic as its EHR.
• Able and willing to provide informed consent (or informed consent obtainable from a designated proxy).

You may not qualify if…

• Inability to understand English and/or Spanish

Where it is running

• University of Texas San Antonio Health Science Center — San Antonio, Texas, United States (enrolling)
• Stanford University — Palo Alto, California, United States (enrolling)
• California Pacific Medical Center — San Francisco, California, United States (enrolling)
• University of Miami — Miami, Florida, United States (enrolling)
• University of Kansas Medical Center — Kansas City, Kansas, United States (enrolling)
• Hennepin County Medical Center — Minneapolis, Minnesota, United States (enrolling)
• University of California, Irvine — Irvine, California, United States (enrolling)
• Duke University — Durham, North Carolina, United States (enrolling)
• Wake Forest University — Winston-Salem, North Carolina, United States (enrolling)
• Providence Health & Services — Portland, Oregon, United States (enrolling)
• Columbia University — New York, New York, United States

Full record on ClinicalTrials.gov

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