Stigma, Self-management, & Quality of Life in SCD
Completed
Conditions studied: Sickle Cell Disease, Quality of Life, Stigma, Social, Disease Self-Management
In brief
Many individuals with sickle cell disease experience both a poor quality of life and stigma. Individuals with SCD often experience high levels of stigma which can be a barrier to good self-management and hinder quality of life. The purpose of this research is to improve understanding of the relationships between stigma, self-management, and quality of life in SCD in the United States and Jamaica. The findings from this project will contribute to the development of a tool to measure self-management strategies and will also guide the development of interventions to improve SCD self-management.
Key facts
- Study ID
- NCT03488264
- Run by
- Duke University
- People needed
- 102
- Starts
- 2018-02-13
- Expected to finish
- 2018-10-27
- Last updated by the study team
- 2019-04-11
Who can join
Age: 18 and older. Sex: any. Healthy volunteers: not accepted.
You may qualify if…
- at least 18 years of age,
- ability to understand English,
- diagnosis of SCD based on one of the following genotypes (ICD-10-CM code): HbSS (D57.0-D57.02), HbSC (D57.2-57.21), Hb SS/Bthalassemia+ or Hb SS/a-thalassemia- (D57.1, D57.4-D57.41, D57.8-D57.819).
Where it is running
- Dominique Bulgin — Durham, North Carolina, United States
- Sickle Cell Unit, The University of the West Indies — Mona, Kingston 7, Jamaica
Full record on ClinicalTrials.gov
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