Implementation of the Live Donor Champion Program
Completed · Not applicable
Conditions studied: End-stage Renal Disease
In brief
The Live Donor Champion Program is a clinical education program offered to patients placed on the waitlist for kidney transplantation at the Johns Hopkins Comprehensive Transplant Center. The goal of the program is to increase patient knowledge regarding end stage renal disease, kidney transplantation, and live kidney donation and to help patients identify potential live kidney donors. Patients are encouraged to bring family and friends to participate in the program and act as advocates on their behalf. These friends and family members are labeled "live donor champions" and work to assist the patient in spreading awareness about end stage renal disease, kidney transplantation, and live kidney donation. The objectives of this project are to pilot-test and optimize strategies for the dissemination of the Live Donor Champion program in the clinical transplant center setting. The goals of the study are to develop an implementation protocol for centers who want to establish a live donor champion program at their institution.
Key facts
- Study ID
- NCT03435510
- Run by
- Johns Hopkins University
- People needed
- 111
- Starts
- 2018-05-30
- Expected to finish
- 2025-04-30
- Last updated by the study team
- 2025-12-22
Who can join
Age: 18 and older, up to 100. Sex: any. Healthy volunteers: accepted.
You may qualify if…
- Kidney transplant candidates aged≥18 added to the waitlist in the last year with no potential live donors are eligible.
- If there is an individual willing to donate, but the candidate is unwilling to consider this option or this particular individual, the candidate is eligible for the trial and may still benefit from identification of new donors or increased comfort accepting donation from others.
- Participants at University or University of Alabama must speak English. Participants at Northwestern University must speak English or Spanish.
You may not qualify if…
- Candidates with live donors currently under evaluation for donation will be excluded.
- Those with a previous kidney transplant will be excluded
- Live Donor Champions Inclusion Criteria
- aged≥18
- English-speaking
- Be a "Live Donor Champion" (a friend, family member or community member willing to advocate for the wait-listed patient).
- Exclusion Criteria
- <18, not English-speaking
- LDC Administrators Inclusion Criteria
- aged≥18
- English-speaking
- Performed tasks related to implementing the LDC program
- Exclusion Criteria
- <18, not English-speaking, and no affiliation with implementing the LDC program
Where it is running
- Washington University in Saint Louis — St Louis, Missouri, United States
- University of Pennsylvania — Philadelphia, Pennsylvania, United States
Full record on ClinicalTrials.gov
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