CEGIR 7807: Validation of Online Cohort of EGID Patients Enrolled in RDCRN CEGIR Contact Registry

Completed

Conditions studied: Eosinophilic Esophagitis

In brief

The purpose of this study is to validate the online cohort of EGID patients enrolled in the RDCRN CEGIR CR. In order to achieve this objective, the investigators will determine the agreement between self-reported EGID information by the enrollees and their physician's report and medical records. All participants enrolled in the RDCRN CEGIR CR with EGIDs will be invited via email to participate in this study.

Key facts

Study ID

NCT03382678

Run by

Children's Hospital Medical Center, Cincinnati

People needed

187

Starts

2018-09-04

Expected to finish

2020-07-01

Last updated by the study team

2021-09-01

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Enrolled in the RDCRN CEGIR Contact Registry, and with Internet access.
• Diagnosis of EGID (EoE, EG, EGE, EE and/or EC)
• Age: all ages. Parents/guardian of children < 18 years of age will respond to the questionnaire on behalf of their child.

You may not qualify if…

• Inability to provide informed consent and complete survey
• Unaffected family members of EGID patients
• European Union participants who did not complete General Data Protection Regulation requirements.

Where it is running

• Cincinnati Children's Hospital Medical Center — Cincinnati, Ohio, United States
• Cincinnati Children's Hospital Medical Center — Cincinnati, Ohio, United States

Full record on ClinicalTrials.gov

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