World Bleeding Disorders Registry

Recruiting now

Conditions studied: Hemophilia A, Hemophilia B, Von Willebrand Diseases

In brief

The WBDR is an international observational disease registry of patients with hemophilia. It will provide a platform for a network of hemophilia treatment centres (HTCs) around the world to collect uniform and standardized patient data and guide clinical practice. With informed consent from the patient, the WBDR stores anonymous data about the person's disease, such as hemophilia type and severity, symptoms, and treatment.

Key facts

Study ID

NCT03327779

Run by

World Federation of Hemophilia

People needed

20000

Starts

2018-01-26

Expected to finish

2028-01-01

Last updated by the study team

2023-08-14

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Patients of participating Hemophilia Treatment Centres with Hemophilia A or B, or von Willebrand Disease

You may not qualify if…

• none

Where it is running

• World Federation of Hemophilia — Montreal, Quebec, Canada (enrolling)

Full record on ClinicalTrials.gov

Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.