Aligning Patient Preferences: a Role Offering Alzheimer's Patients, Caregivers, and Healthcare Providers Education and Support

Completed · Not applicable

Conditions studied: Alzheimer Disease, Dementia

In brief

Nursing home (NH) patients with Alzheimer's disease and related dementias often receive unwanted, burdensome treatments such as hospitalization. Advance care planning (ACP) is a key strategy to support patients and family-caregivers in making informed decisions and ensuring treatment preferences are proactively known and honored. The ACP Specialist Program will improve care and reduce unwanted, burdensome hospitalizations through improved ACP procedures, standardized staff education on ACP, and systematic ACP facilitation delivered by existing NH staff.

Key facts

Study ID

NCT03323502

Run by

Indiana University

People needed

47396

Starts

2020-02-01

Expected to finish

2022-08-31

Last updated by the study team

2025-12-11

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Facilities are owned by NH corporate partners
• Facilities are Medicare/Medicaid-certified
• Facilities have an electronic medical records system
• Minimum bedsize of 50 or more;
• At least 50% long-stay as defined by a length of stay of 100 days or longer.

You may not qualify if…

• Problematic or unstable facilities will be removed in consultation with NH corporate leaders prior to randomization

Where it is running

• Miller's Merry Manor — Warsaw, Indiana, United States
• Signature HealthCARE LLC — Louisville, Kentucky, United States

Full record on ClinicalTrials.gov

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