SHARE for Persons With Chronic Conditions and Their Family Caregivers

Withdrawn before enrolling · Not applicable

Conditions studied: Chronic Health Conditions, Family Caregivers

In brief

SHARE-CC is an intervention for families facing the challenges of chronic conditions. SHARE-CC (Support, Help, Activities, Resources, and Education) addresses the need for both members of a care dyad to be actively involved in current and future care planning. This intervention aims to increase knowledge of services, improve communication skills and well-being, and facilitate the understanding of care values and preferences in order to create a mutually agreed upon care plan. This intervention will be tested in a randomized control trial.

Key facts

Study ID

NCT03289624

Run by

Benjamin Rose Institute on Aging

People needed

0

Starts

2017-08-15

Expected to finish

2018-08-31

Last updated by the study team

2020-08-26

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• PWCC:
• Living in geographic area of organizations delivering service
• Living at home rather than in an institutional setting
• Have a family CG as defined below
• Confirmed diagnosis of at least one chronic illness (e.g., heart disease, diabetes, COPD, arthritis, kidney disease, stroke, HIV-AIDS, etc.)
• Require assistance with two or more activities of daily living (e.g., shopping, managing medications, dressing) or receives help with complex medical care tasks (e.g., wound care, preparing special meals); and
• Short Blessed error score between 0 and 6 demonstrating normal cognitive function.
• For CGs to be eligible
• must be the PWCC's spouse/partner, adult child, in-law, grandchild, step-child, or other close family member who has or will have primary responsibility for providing assistance to the PWCC

You may not qualify if…

• Out of geographic areas
• a primary diagnosis of a neurocognitive disorder (e.g. Alzheimer's Disease or related dementia)
• a mental health condition (e.g., schizophrenia, bipolar disorder, major depression)
• a traumatic brain injury,
• intellectual or developmental disability
• individuals experiencing extreme difficulty adjusting and coping to the diagnosis
• individuals in the terminal phase of a chronic condition (i.e., eligible for Hospice).

Where it is running

• Southern Caregiver Resource Center — San Diego, California, United States
• Family Caregiver Alliance — San Francisco, California, United States
• Geriatric Care Consultant — Ridgewood, New Jersey, United States
• Benjamin Rose Institute on Aging — Cleveland, Ohio, United States

Full record on ClinicalTrials.gov

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