Palliative Care Communication With Alaska Native and American Indian People

Completed · Not applicable

Conditions studied: Advance Care Planning

In brief

This mixed-methods study is culturally tailoring and evaluating a communication intervention to increase the frequency and quality of advance care planning with diverse American Indian and Alaska Native adults with serious, life-limiting illness in primary care at two sites.

Key facts

Study ID: NCT03256110
Run by: Southcentral Foundation
People needed: 59
Starts: 2019-01-28
Expected to finish: 2021-07-01
Last updated by the study team: 2021-10-11

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

Alaska Native and/or American Indian (patients)
Age 18 or older (patients and providers)
Employed at least 2 years as a primary care provider at one of the two study sites (providers)
Have a primary care provider of record at one of the two study sites (patients)
Have had at least 2 visits with primary care provider in previous 12 months (patients)
Having at least one serious, life-limiting condition, including metastatic cancer, primary lung cancer, chronic obstructive pulmonary disorder, heart disease, liver disease or cirrhosis, renal failure, or being oxygen dependent. (patients)

You may not qualify if…

Under age 18 (patients and providers)
Not Alaska Native or American Indian (patients)
Not having a primary care provider at one of the study sites (patients)
Not being employed for at least two years as a primary care provider at one of the study sites (providers)
Not having had at least 2 visits with a primary care providers at one of the study sites in the previous 12 months (patients)
Not having a serious, life-limiting condition, such as metastatic cancer, primary lung cancer, chronic obstructive pulmonary disorder, heart disease, liver disease or cirrhosis, renal failure, or being oxygen dependent.

Where it is running

Southcentral Foundation — Anchorage, Alaska, United States
First Nations Community HealthSource — Albuquerque, New Mexico, United States

Full record on ClinicalTrials.gov

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