Disseminating NIH Evidence Based Sickle Cell Recommendations in North Carolina

Completed

Conditions studied: Sickle Cell Disease

In brief

This project will improve the efficiency and quality of healthcare for persons with sickle cell disease, an under-served and at risk population by implementing a co-management model of care. Many patients with sickle cell disease (SCD) receive care primarily from specialty physicians and emergency departments (ED), thus resulting in a lack of primary care and a high number of ED visits and hospitalizations. The goal is to improve PCP and SCD specialist co-management. The overall purpose of this dissemination project is to evaluate utilization data, as well as patient and provider reported outcomes associated with the dissemination of a toolbox of decision support tools to PCP's and ED providers across NC and SC.

Key facts

Study ID

NCT03253211

Run by

Duke University

People needed

4392

Starts

2018-11-06

Expected to finish

2019-12-15

Last updated by the study team

2020-03-27

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• patient with diagnosis of sickle cell disease, emergency department clinician, or primary care clinician in the state of NC or part of SC

You may not qualify if…

• Non-English speaking, non-resident of NC or SC

Where it is running

• Community Care of North Carolina — Raleigh, North Carolina, United States

Full record on ClinicalTrials.gov

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